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"contents": "<span style=\"font-weight: 400;\">There’s growing recognition that creative pursuits like painting, singing or dancing can have a positive impact on physical and mental health, can lessen isolation and can increase connection to community.</span>\r\n\r\n<span style=\"font-weight: 400;\">Creative activities can also be an effective and safe way to learn about people’s life experiences, especially those that are upsetting or hard to talk about.</span>\r\n\r\n<span style=\"font-weight: 400;\">Our team uses art as a research tool to help increase understanding about mental health and well-being, and to build better systems of care and support.</span>\r\n\r\n<span style=\"font-weight: 400;\">We are using art to learn about stigma and marginalisation as a result of mental distress, disability or a refugee background. We collaborated with 35 people who identify as women, who told us that making art and being creative was a powerful tool for self-empowerment.</span>\r\n<h4>Invisible torment</h4>\r\n<span style=\"font-weight: 400;\">Women who experience mental illness, disability or who have a refugee background routinely face stigma and discrimination. This can have profound effects, including reduced quality of life, barriers to accessing healthcare, reduced employment prospects, reduced access to affordable housing and diminished opportunity to experience motherhood.</span>\r\n\r\n<i><span style=\"font-weight: 400;\">Read more in </span></i><span style=\"font-weight: 400;\">Daily Maverick</span><i><span style=\"font-weight: 400;\">: “</span></i><a href=\"https://www.dailymaverick.co.za/opinionista/2022-01-27-mental-health-in-this-time-of-virus-capitalism-now-more-than-ever-we-need-revolutionary-acts-of-love/\"><i><span style=\"font-weight: 400;\">Mental health struggles are not about weakness – but wilfully ignoring somebody’s pain is</span></i></a><i><span style=\"font-weight: 400;\">”</span></i>\r\n\r\n<span style=\"font-weight: 400;\">The experience of stigma and discrimination often remains invisible. It can be upsetting to talk about and hard to describe. Creative activities, such as making art, can help bring these experiences to light. Art can offer a way to express things that are tricky to say out loud.</span>\r\n\r\n<span style=\"font-weight: 400;\">As one participant in our study reflected: “Sometimes I don’t have the words for things… [art was] a really alternative way to express something without having to necessarily have the words for it.”</span>\r\n\r\n<span style=\"font-weight: 400;\">Art can act like a mnemonic (prompting memories and recollections), can help people feel relaxed and safe when exploring upsetting experiences, can help people feel in control of their own stories, and can enable them to share these stories in ways they feel comfortable with.</span>\r\n\r\n<span style=\"font-weight: 400;\">In our research we used a form of art creation called body mapping.</span>\r\n<h4>Mapping stigma</h4>\r\n<span style=\"font-weight: 400;\">Body mapping involves tracing your body onto a large piece of paper or fabric and then decorating this outline by drawing, painting, sewing, collage and writing.</span>\r\n\r\n<i><span style=\"font-weight: 400;\">Read more in </span></i><span style=\"font-weight: 400;\">Daily Maverick</span><i><span style=\"font-weight: 400;\">: “</span></i><a href=\"https://www.dailymaverick.co.za/article/2022-05-20-persons-living-with-mental-illness-face-major-challenges-accessing-disability-grant/\"><i><span style=\"font-weight: 400;\">Persons living with mental illness face major challenges accessing disability grant</span></i></a><i><span style=\"font-weight: 400;\">”</span></i>\r\n\r\n<span style=\"font-weight: 400;\">The body maps that participants created are visually striking, and each one tells a unique life story. These body maps were used as a jumping-off point to discuss the themes and experiences they encompass.</span>\r\n\r\n<span style=\"font-weight: 400;\">Participants explored the way stigma exists on a spectrum, ranging from subtle (indifference or ignorance) to overt (bullying, verbal and physical abuse). One participant wrote the words “now let’s add stigma” on her map to represent the way stigma had made it hard and scary to seek medical support.</span>\r\n\r\n<span style=\"font-weight: 400;\">When we spoke about her map, she told us: “I thought mental illness was like you’re locked away in a psych ward and left to die, that there is no help […] that’s what I got from social media and television.”</span>\r\n\r\n<span style=\"font-weight: 400;\">Another participant represented her body as a multicoloured jigsaw puzzle to symbolise the “many fragments and pieces that make you, you”. The jigsaw also represented her experience of healthcare, with doctors only seeing one piece of her and not acknowledging or offering support for other pieces.</span>\r\n\r\n<span style=\"font-weight: 400;\">She said: “People with disabilities are people first and have mental health needs just like the rest of the world. These people have been overlooked.”</span>\r\n\r\n<span style=\"font-weight: 400;\">Stigma was often identified as the reason participants felt the need to hide their feelings or pretend they were not struggling.</span>\r\n\r\n<span style=\"font-weight: 400;\">One participant drew two bodies on her map to represent this – to show that a person works to the point of exhaustion every day to make sure they’re presenting themselves in an appropriate way, but behind the scenes is something people don’t see.</span>\r\n\r\n<span style=\"font-weight: 400;\">Participants also used maps to celebrate their strength, resilience and the positive influences in their lives like friends, family, pets and nature. Making art was a common positive influence.</span>\r\n\r\n<i><span style=\"font-weight: 400;\">Read more in </span></i><span style=\"font-weight: 400;\">Daily Maverick</span><i><span style=\"font-weight: 400;\">: “</span></i><a href=\"https://www.dailymaverick.co.za/opinionista/2022-04-28-my-hellish-journey-into-gautengs-mental-health-services-as-a-bipolar-person/\"><i><span style=\"font-weight: 400;\">My hellish journey into Gauteng’s mental health services as a bipolar person</span></i></a><i><span style=\"font-weight: 400;\">”</span></i>\r\n\r\n<span style=\"font-weight: 400;\">Participants saw art as an avenue for self-expression, meditation, relaxation and a way to process feelings. Participants also told us making art as part of the research project allowed them to take stock and reflect on their experiences.</span>\r\n\r\n<span style=\"font-weight: 400;\">They also used the research as an opportunity to reach new artistic heights. As one participant reflected: “My body map is by far the greatest piece of art I have created.”</span>\r\n<h4>The power of art</h4>\r\n<span style=\"font-weight: 400;\">An important takeaway from this work is the power and importance of art in well-being, health and social inclusion.</span>\r\n\r\n<span style=\"font-weight: 400;\">Participants said they wished body mapping workshops, or other free creative activities, were regularly accessible.</span>\r\n\r\n<span style=\"font-weight: 400;\">Having a safe, supportive space to be creative and share their experiences with others was affirming and therapeutic. Art was a powerful way to share stories, shine a light on injustice, and encourage empathy and respect for difference.</span>\r\n\r\n<span style=\"font-weight: 400;\">One participant said it best: “It’s empowering for everybody to have a voice [through art] and to be able to tell their story. That’s powerful.” </span><b>DM168</b>\r\n\r\n<i><span style=\"font-weight: 400;\">First published by</span></i> <a href=\"https://theconversation.com/sometimes-i-dont-have-the-words-for-things-how-we-are-using-art-to-research-stigma-and-marginalisation-183819\"><span style=\"font-weight: 400;\">The Conversation</span></a><span style=\"font-weight: 400;\">.</span>\r\n\r\n<i><span style=\"font-weight: 400;\">This story first appeared in our weekly </span></i><span style=\"font-weight: 400;\">Daily Maverick 168</span><i><span style=\"font-weight: 400;\"> newspaper, which is available countrywide for R25.</span></i>\r\n\r\n<img loading=\"lazy\" class=\"alignnone size-full wp-image-1334195\" src=\"https://www.dailymaverick.co.za/wp-content/uploads/2022/07/DM-23072022001jhbis.jpg\" alt=\"\" width=\"720\" height=\"947\" />",
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