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"title": "Electronic death registration is a win-win for SA — let’s make it happen",
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"contents": "<span style=\"font-weight: 400;\">A recent report by the South African Medical Research Council (SAMRC) highlights the underreporting of HIV in official mortality statistics.</span>\r\n\r\n<span style=\"font-weight: 400;\">Official cause of death statistics are based on what doctors write on death notification forms. As part of the process of death registration, medical practitioners are required by law to provide information about the medical conditions resulting in each death. Multiple studies have identified concerns about the quality of the information provided by doctors and the Department of Health has been urged in a </span><a href=\"https://www.spotlightnsp.co.za/wp-content/uploads/2025/05/a-call-to-action-for-cause-of-death-reporting-in-sa.pdf\"><span style=\"font-weight: 400;\">policy brief</span></a><span style=\"font-weight: 400;\"> to address them as it clearly undermines the quality of data used by our government for health planning and resource allocation.</span>\r\n\r\n<span style=\"font-weight: 400;\">The recently reported </span><a href=\"https://www.spotlightnsp.co.za/wp-content/uploads/2025/05/ncdovreport3-1.pdf\"><span style=\"font-weight: 400;\">study</span></a><span style=\"font-weight: 400;\"> found extensive underreporting of HIV as a cause of death. Only 28% of deaths that occurred in a national sample of public sector hospitals where the medical record had clear clinical indications of HIV, had HIV specified on their death notification form.</span>\r\n\r\n<span style=\"font-weight: 400;\">Aside from ensuring that medical certification of the cause of death is part of the medical training curriculum, and that additional training is provided during internship periods, another key issue to address is that many doctors are reluctant to record HIV/Aids as a cause of death due to concerns about maintaining patient confidentiality. In 2014, a self-sealing section was added to protect information about cause of death on the death notification form, but this has clearly not had the desired effect.</span>\r\n\r\n<span style=\"font-weight: 400;\">Following the deaths of at least 22 children from contaminated food in 2024, President Cyril Ramaphosa </span><a href=\"https://www.spotlightnsp.co.za/wp-content/uploads/2025/05/address-by-president-cyril-ramaphosa-on-deaths-of-children-due-to-food-borne-illnesses.pdf\"><span style=\"font-weight: 400;\">announced</span></a><span style=\"font-weight: 400;\"> that the Department of Health would develop an electronic system for recording causes of death as one of several responses to the emergency. The move to an electronic system offers a strategic opportunity to address the challenge around confidentiality and promises a lot more. It allows for secure, institution-based data management that protects confidentiality, encourages accurate reporting and strengthens the integrity of vital statistics.</span>\r\n\r\n<span style=\"font-weight: 400;\">Benefits of this digital transition will include:</span>\r\n<ul>\r\n \t<li>Improved data quality and confidentiality, encouraging accurate reporting of sensitive conditions like HIV/Aids;</li>\r\n \t<li>Automated validation checks, reducing certification errors at the point of data entry;</li>\r\n \t<li>Real-time access to mortality data, enabling rapid public health responses; and</li>\r\n \t<li>A platform for quality assurance and feedback, currently not possible in the paper-based system.</li>\r\n</ul>\r\n<span style=\"font-weight: 400;\">Ultimately, moving away from a paper-based process of death registration will reduce the administrative burden and improve efficiency across the system. This presents a timely and valuable opportunity to collaborate across departments, including health, home affairs and Statistics South Africa, to modernise the country’s civil registration and vital statistics system.</span>\r\n\r\n<span style=\"font-weight: 400;\">We are at a pivotal moment for such coordinated policy action. Investing in a robust electronic system for cause-of-death certification will strengthen South Africa’s public health planning, improve disease surveillance and increase accountability. The long-term returns – through faster, more reliable data – are substantial for both governance and health outcomes. It is a win-win. </span><b>DM</b>\r\n\r\n<i><span style=\"font-weight: 400;\">Dr Pam Groenewald and Professor Debbie Bradshaw are with the South African Medical Research Council’s Burden of Disease Research Unit.</span></i>\r\n\r\n<b><i>Note:</i></b><i><span style=\"font-weight: 400;\"> Spotlight </span></i><a href=\"https://www.spotlightnsp.co.za/2025/04/24/how-an-samrc-study-found-that-hiv-deaths-in-sa-may-be-massively-undercounted/\"><i><span style=\"font-weight: 400;\">previously reported</span></i></a><i><span style=\"font-weight: 400;\"> on the issues discussed in this opinion piece. That reporting included the sentence: “In the meantime, routine mortality data from Stats SA should clearly be taken with a pinch of salt.” That sentence may have been construed as reflecting Groenewald and the SAMRC’s views. Groenewald has asked us to clarify that it does not. She points out that Stats SA is obligated to process the data it receives and the quality issues stem from what doctors report.</span></i>\r\n\r\n<i><span style=\"font-weight: 400;\">This </span></i><a href=\"https://www.spotlightnsp.co.za/2025/05/30/electronic-death-registration-is-a-win-win-for-sa-lets-make-it-happen/\"><i><span style=\"font-weight: 400;\">piece</span></i></a><i><span style=\"font-weight: 400;\"> was first published by </span></i><a href=\"https://www.spotlightnsp.co.za/\"><i><span style=\"font-weight: 400;\">Spotlight</span></i></a><i><span style=\"font-weight: 400;\"> – health journalism in the public interest. Sign up to the </span></i><a href=\"https://www.spotlightnsp.co.za/subscribe-to-our-newsletter/\"><i><span style=\"font-weight: 400;\">Spotlight newsletter</span></i></a><i><span style=\"font-weight: 400;\">.</span></i>\r\n\r\n<img loading=\"lazy\" class=\"alignnone size-full wp-image-2335440\" src=\"https://www.dailymaverick.co.za/wp-content/uploads/2024/08/image1-1.jpg\" alt=\"\" width=\"1378\" height=\"371\" />\r\n\r\n<img loading=\"lazy\" src=\"http://46.101.136.92/SpotlightTrackingPixel.php?S=DM&A=Electronic_death_registration_is_a_win_win_for_SA_lets_make_it_happen\" alt=\"\" width=\"1\" height=\"1\" />",
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